Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Thursday, July 16, 2009

Finally A Sunny Day!

Yesterday we finally had a sunny day. I convinced Matthew that it would be fun to try to walk on the boy's slip-n-slide. We turned the water down very low and Matthew walked down the entire slip-n-slide and back and got his legs all wet.

He thought it was pretty fun and even laughed, but he chose to watch the boys slide instead of trying it again. Whoo-hoo Matthew! His PT Gina also got him to step into his little pool and try to squirt us with his new water blaster. He found this quite funny. She also got him to sit down in his pool.

He didn't want to at first but, he did sit down and had fun throwing all of the balls out of the pool. When it was our turn to throw them back in to him, he changed his mind and got out. The first few splashed him and he was done . We are still so proud of him. I'm adding video of this along with new pictures on his blog site.
We are in the process of trying to get a special bike for Matthew. He needs a bike that fits him . We found a company that makes a DCP mini bike.
http://www.freedomconcepts.com/products/discovery/dcp12-mini/#tech-specs. This would be perfect for him. It even comes with a parent handle incase he gets too tired. Right now, he only rides his bike with his therapists and only goes in our garage or down our driveway before he gives up and is done. We will have to turn it in to our insurance to see if we can get it covered.

Matthew is still tolerating the enzymes but with increased thirst and very distended belly. It seems like his belly is even more distended at times if that can even be possible. Venting does seem to help some.

Today it is raining again!!!!. Another storm is getting close as I type. I hope we don't lose power

video

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