Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Wednesday, July 6, 2011

Matthew has had some good days. He is able to rest so much more being out of school. We had our annual garage sale on Saturday and Matthew had a blast selling "Mighty Matthew" bracelets and lollipops. He made over 200 dollars. :) On Sunday, we went to Six Flags Great Escape. It was an overcast day which was perfect for Matthew. The park wasn't crowded and with the exception of being caught in a thunderstorm, we had a good time. :)
Matthew was able to bring his new power chair to our local 4th of July parade. He did a wonderful job driving it and being cautious of not running into other people. It was a very hot day and he needed his cooling vest and wrap along with a sun shade. he was happy to get a few of his favorite lollipops to snack on. The excitement is building for his benefit on the 31st of July. Matthew talks about it every day. He calls it his "big party". Tomorrow there will be a "Mighty Matthew" bake sale at our local hospital. Matthew will be stopping by to help out. I am sure he will enjoy it.

We leave for Boston next Thursday/ Friday for two appointments(neurology/metaboilsm). We go back again on the 27th/28th for a few more appointments( GI and mito-metabolism) and his surgery for the J-tube placement is scheduled for Aug. 18th. We have a pre-op appt on the 17th. I am not sure how long he will have to stay after surgery.