Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, August 24, 2009

Some pictures from our camping trip this past weekend. Everyone had a great time. Check out more pictures on our family blog site.

Matthew with his friend Bella.
Matthew sleeping on the bunk bed in our cabin.

Matthew and Bella

Matthew on our friend Nichole's boat.

Matthew and Nichole

Monday, August 17, 2009

We had a wonderful weekend. On Friday we went to our local Sand Sculpture contest at the City Beach. My mom brought Matthew about half way through and he was great there. He ate lunch and helped spray our sculpture of Snoopy with water .

He even stepped into the water and enjoyed it. We ended up winning first place in our category. Bradley and my niece Courtney made a" Hippo Head " and won third place and Steven and his friends also won third place for a "race car" sculpture.

On Saturday, we went to a Balloon Festival in Canada. It has the worlds largest inflatable amusement park. Matthew loved going through the different jumping houses and obstacle courses. He didn't like the slide parts.

That evening we watched as over 50 hot air balloons took flight. It was amazing. The boys really enjoyed it.
The only down side of the day was that it was very hot out. (High 80's) Matthew wasn't tolerating the heat well at all until we put his new cooling vest on him. He seemed to do so much better once it was on.

Yesterday we took the boys downtown to see a motorcycle parade. Over 300 motorcycles drove by.

Now for the medical stuff. Matthew went to the doctors this morning for his routine check up. His doctor still wants us to contact the Mayo Clinic to see if he can be seen there to get another opinion on treatment. I did e-mail them this morning and we should hear something back from them within two days. Matthew's sugars have been getting higher. He had two readings of over 400 and his fasting base line reading is around 116-120. He is also still having daily leg issues where his legs go numb. He says that they get "soft" and that he has to hold them up. This has been lasting around 10-15 minutes each time it happens.
We also have a tentative meeting date in Boston on September 11th. We will be meeting with Matthew's doctors and the PACT team. We will also be walking in the Mito Walk on that Sunday.

Saturday, August 1, 2009

On Wednesday morning, we went Blueberry picking .
Friends of ours joined us and everyone had a good time. Matthew loves to pick anything food related. Of course, he ate more than he picked.Later on in the afternoon, Gina (his PT) was able to get him into the pool. It took some time and he wasn't the happiest camper, but he got into his little doggy float and went around the pool a few times with Gina. I was very proud of him.
Matthew also received a special surprise in the mail this week. Online friends of ours sent him some new ponies. He just loves them . Thank you Gabi and Mikey!!!