Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Sunday, April 14, 2013

We now have a new Deputy in our house. Yesterday, Matthew was Deputized in the Town of Lewis. He went on his very first patrol and captured the "Lollipop Bandits" . His reward..... close to 1000 DumDum lollipops . He had a very adventurous afternoon and smiled from ear to ear. His favorite part of the "Capture" was spraying the Bandits with training "Pepper Spray" :). We can't thank the Essex County Sheriff's Office enough for making this day so special. It will definitely be remembered .

Matthew's formula rate is up to 59 ml/hr since Friday evening. His belly is quite distended and his urine has decreased even more than normal. Yesterday, his hands were puffy . This rate might be pushing Matthew past his fluid limit. We may have to back down a bit and see if he can adjust.

Matthew's follow-up team meeting in Boston is on April 29th. Terry and I are planning on attending. It will be a busy week for us . Boston on Sunday and Monday; Bradley has surgery on his foot on Wednesday ; Confirmation on Friday for Bradley; celebration party on Saturday; and back to Boston on Sunday and Monday for more appointments.