Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Wednesday, April 6, 2016

Just a quick update . We will be traveling back to Boston next Thursday. Matthew will be admitted to MGH. He will be given IV fluids overnight and is scheduled for both a J-tube and G-tube change. He will also be having a quick sigmoidoscopy done to examine his rectum. He has been having the same type of lower abdominal pressure that he was having before his colon was removed. He has also been passing bloody mucus like stool almost daily. This shouldn't be happening without his colon. We had a stool test done last month and got the results back last week. The test was a Calprotectin test. It looks for inflammation within the bowels. The normal range would be anything less than 50. Matthew's came back extremely high at greater than 2500. This would explain why he feels the pressure. Again, he isn't complaining about it and says it doesn't hurt. His pain tolerance is definitely that of a Super Hero.