Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, September 28, 2009

Matthew's week went well. He still is enjoying school. His class invited Grandparents in on Friday for a special grandparent get together. They sang a few songs, and ate some special treats together
Matthew was shy during the performance and didn't sing much, but he was very happy to have his Gramma, Grandpa and Nana there to visit.
We went to our friends Friday night for dinner and Matthew had a blast playing with his friend Ava. He insisted on wearing her pink vest and her old Baby pants(size 0-3 mos) home that night. He is just so cute.
We heard from Boston this morning. They are still working out a time for Matthew to have the Botox injection done. It should be sometime soon. Matthew's new AFO's are ready . We are going down to Saratoga this Thursday afternoon to pick them up.
Medical wise, everything is the same. Nothing more, nothing less. We are just enjoying every good day he has been having.

Monday, September 14, 2009

Matthew and his new friend Ava at the 2009 Mito walk

Matthew and Eithene having fun with some ribbons and Matthew wearing Eithene's sun glasses.

Matthew and his new friend Colbie at the Mito walk.

Sunday, September 6, 2009

We have been finally enjoying some summer weather. It has been beautiful the past few days. Summer has arrived just in time for Fall.

Matthew went to the beach on Friday with friends of ours. He played in the sand but did not go near the water. He even let a friend of mine bury his legs and make him look like a mermaid.
He wore his cooling vest and it worked great. He didn't complain of being hot and didn't look like he was wilting.
Yesterday we went on a walk at a local state park. Matthew rode in the backpack carrier and had a good time. Matthew's first day of Kindergarten is on Tuesday. He will be picked up in the school mini van. He isn't allowed to ride on the bus since it's against New York State law to put a car seat on a big school bus. He will be the only child in the van and they will bring him directly to and from the school.

Friday morning we have to leave for Boston around 4 AM. We have to be there for our 10 :30 meeting. We will be staying there through Sunday. We are walking in the Mito walk on Sunday. We are very excited to be meeting some of our caringbridge friends at the walk.

Today is another beautiful day,. Matthew has been resting in the living room so far, but I am going to get him up and outside soon.