Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Sunday, November 22, 2009

We leave for Boston tomorrow. Matthew will have the Botox procedure done at 8AM on Tuesday. We have to arrive at the hospital at 6 AM. Matthew also has an appointment with his metabolic doctor in the afternoon. If everything goes well, we should be home by Tuesday evening. After another meeting with his bosses, Terry was allowed the time off. They will discuss his position when he gets back. Matthew has had a very busy weekend.

Yesterday he received some wonderful packages from his friends. He received a whole bag full of ponies from our friends Mikey and Gabi. He also received a belated birthday present from his friend Linda, and several nice letters and cards from online friends around the United States. A very special thank you to everyone who made him smile yesterday.

Today we sold paper Make-A-Wish angels at the mall. All donations go directly to granting wishes in our local area. Harry came along with us and was very well behaved. Matthew has had one new symptom develop. A few times this week has complained of his legs getting wobbly. He doesn't have his new braces yet, so I am not sure if its from not wearing his old ones. His orthopedic doctor in Boston didn't think his old braces were helping much, so he hasn't been wearing them.

Saturday, November 7, 2009

Matthew had a wonderful time at his Royal Birthday Ball today. He was so happy to see his preschool friends from last year. All of the girls had beautiful dresses on and the boys were handsome princes.

Matthew couldn't wait until it was time to eat his special royal pudding. He ate every last bite and even licked the cup clean. After all of the presents were opened, everyone went to the tumble gym.
Matthew didn't want to stay very long in there and ended up getting hurt on the way out. He was kicked in the chest and belly by his friend who was swinging on a rope. He flipped and fell and his bag of lollipops broke open. It took him a few moments to catch his breath and after resting in the other room for a few minutes, he felt better. Other than that, he had a blast.

Sunday, November 1, 2009

Another busy weekend for us.

Yesterday, we spent most of the day cleaning up around the house. I carved Matthew's pumpkin for him. He didn't want to touch it. We took the boys trick-or-treating last night. they had a good time and got way too much candy and treats.

Today, we went to the bowling alley for an MDA Bowl-a-thon event. It was put on by the Plattsburgh Letter Carriers. Matthew started off the event by rolling the first ball.
He was is a good mood while we were there. He told jokes, walked around visiting everyone, colored pictures, and drew the winning tickets for the raffles. Despite still having new belly issues, he had a wonderful weekend. Hopefully it will continue into this week. His Birthday is this Friday. He is counting down the days until he turns 5.