Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Sunday, December 20, 2009

Matthew has had a very busy weekend. He seems to be feeling much better.

On Saturday we had Steven's 11th birthday party at the Bowling Alley. Matthew was very well behaved and everyone had a good time.

Today we drove 2 1/2 hours to Albany for the Starlight Holiday party. It was so much fun. The boys had fun playing the free video games and eating pizza. Matthew enjoyed seeing his friend Colbie and her sister Tiffany. Colbie was able to talk Matthew into getting an airbrush
tattoo on his cheek. He got a Tinkerbell tattoo.
After the party we stopped to the Six Flags Holiday in the Park event. We had free passes from Matthew's make-a-wish trip.
It was freezing cold, but very festive. Matthew was wrapped in a blanket in his stroller. All of the buildings were heated so it was just the walk in between that was cold.
A very Fun Day! We have also received several gifts from some very wonderful people. I would like to thank everyone wh​o has sent cards, gifts , or have signed Matthew's guest book. Matth​ew's face lights up every time he goes to the post office to get his Happy Mail.

Mat​thew also goes for his EEG tomorrow morning. We should get the results of it soon afterwards.​

Sunday, December 13, 2009

Matthew has had a very busy weekend.

Yes​terday I took him to see some of his friends perform in a Holiday Irish Step Recital. He enjoyed seeing his friends dance.

We also spent the evening at our friend's house. Matthew helped build a blanket fort and even had more fun knocking it down.

This morning we went to our friends Allison and Donna's house for an early Christmas. Everyone had a good time eating breakfast, playing games and opening gifts.
He is pretty worn out this evening and has big red bags under his eyes, but he is still in good spirits.

He did have more staring spells this weekend. He has his EEG scheduled on the 21st of this month. It will be done at our local hospital