Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Wednesday, February 24, 2010

It's a SNOW DAY here!!! No school for all of us. This morning I convinced Matthew to go out in the deep snow. He actually had fun and stayed out for almost 20 minutes. I was so proud of him. He walked in the snow and helped put a face on a snowman that Steven made. Our snow day did get a bit STRESSFUL after Matthew came back inside. He found and ate a small snack size Snickers candy bar that was in Steven's room. At first he just had a belly ache , so I was trying to vent his belly. Then I noticed that he had some hives starting on his face and he was complaining that he couldn't breath right. I found the ingredients online and the last ingredient listed was "egg whites". I immediately gave him some benadryl. He was still complaining about his breathing and his cheeks were swollen.
I was hesitant about giving him his epi -pen since we have never had to use it before. At that point, Terry had just come home on his lunch break. He looked in Matthew's mouth and said that his tongue and throat looked swollen. By the time Terry was ready to go back to work, Matthew was starting to look a little better. I think that the benadryl was starting to kick in. Matthew spent the rest of the afternoon on the couch. He's taking a nap now and he is feeling better but worn out.
Also , we never did find his "Picky Blue" blankie. I just want to thank everyone who spent time looking for it. I know that every store in the mall has been contacted and they have notices about it hanging up.
We have again been playing phone tag with Matthew's GI office in Vermont. Matthew's button won't come out and it needs to be changed. He screams every time I try to remove it. He will need to have it done in Vermont.

Wednesday, February 17, 2010

Matthew received some Happy mail this week for Valentine's Day. Thank you to everyone. Matthew wanted to take a few pictures with his gifts.

This cute bear was from Matthew's friend Linda.
These are two new pages for Matthew's scrapbook that was made by two wonderful girls who follow Matthew's site.
Matthew also received a package full of ponies from his online friend Mackensie. Thank you so much!!! He loves them.

Matthew with Kelly( MDA fundraiser rep) at Gander Mountain .
Matthew signing his name on his MDA Shamrock at our local Lowes store.

Tuesday, February 9, 2010

A very busy weekend and even more busy week so far.

Saturda​y Bradley performed in the all county music concert, Steven had a basketball game and we took a ride up to Saranac Lake to see the ice castle.
Sund​ay we drove down to Albany to see the Harlem Globetrotte​rs. The boys including Terry loved the show. Matthew laughed so much. His favorite part was where one of the players got his pants pulled down and he was wearing a pink Tutu.

Yesterday, both Bradley and Matthew had appoint​ments for their ears in Vermont. Matthew's ears looked GREAT, but Bradley's right ear had a tear in his ear drum. This happens often when his tubes are out. He has had tubes five times. Looks like we might be going for number six in the near future.

We did get our appointment​s for both CHB and Tufts Hospital in March. The good news is that we got them all in one trip. We will be in Boston the 16th-19th. Matthew will be seeing Dr. Korson at Tufts and his regular doctors at Children's Hospital.