Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Wednesday, July 1, 2009

Cleaning, painting and Strawberry picking. That's what we have been up to this week. I have been busy painting the kitchen and family room and cleaning the house. I did take the kids strawberry picking this afternoon. The boys had a good time. Matthew loves to pick (and eat) strawberries.

Matthew filled his whole container. He was very proud of himself.He went to his pediatrician yesterday for his routine two week check up. Dr. Watkin's e-mailed me with his cell number. He wanted Dr. Meyer to call him to discuss the enzymes. I haven't heard anything back yet... I guess that our "important" team phone conference will not be happening again this week. So far, we have nothing scheduled and with the holiday weekend coming up, I'm pretty sure nothing will be scheduled this week. Terry left yet another phone message with the GI dept. in Boston today. Again, no call back.
Matthew has spent the past few days playing with his new My Little Ponies and just lounging around. He has been going outside in his stroller for his evening walks and he has played well on our back porch. He has had a few crabby moments but he has been in good spirits for the most part. I think that he is enjoying sleeping in and not having to get ready for school.
We are planning on going to New Hampshire on Friday . We have free passes to several area parks that were given to us from Matthew's make-a wish trip. We will be going to a small theme park "Story Land" and staying overnight at a local motel. Terry doesn't have any vacation time left, so we thought that we could go on a few small weekend trips this summer. Some quality family time will do us all some good

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