Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Tuesday, August 2, 2011

The "Mighty Matthew Benefit" was a huge success despite one small bump in the road.

Matthew's ileostomy prolapsed for the first time ever just minutes before the walk began. I remembered his nurse in Boston saying to pour sugar over the stoma. With the help of some of my wonderful friends, we found some sugar at a nearby house. The house we knocked on ironically happened to be the home of a school nurse. She quickly found some sugar and welcomed a group of complete strangers into her home. The sugar seemed to retract his stoma some, but we ended up having to leave the walk and bring Matthew to the ER. A little over an hour later, his stoma was in and "Mighty Matthew " was back. :) We returned for the end of the morning activities and matthew was able to release some special balloons for Eithene's 5th Birthday.

Matthew rested at home in the afternoon and had a blast at the Naked Turtle for the evening event.
THANK YOU to all that helped, supported us and shared in this magical day.
Posted by nyveggie at Tuesday, August 02, 2011

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