Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Friday, August 19, 2011

Matthew's fever was gone this morning and his ostomy also started producing some output. He was able to sit up, was more alert and enjoyed the company of two little friends, Sheldon and Emalie. It was the first time meeting Sheldon who was also inpatient but just discharged today. Sheldon thought that Matthew's AFO braces were pretty cool. Emalie was full of smiles and both Sheldon and Emalie loved Matthew's favorite bedtime Mickey. Matthew loves his new smurfs , perfection game and art supplies. Thank you Nicole and Emalie . I think we might decorate his window tomorrow:)

His Foley catheter was removed this afternoon and in true Matthew fashion, he hasn't peed since. His nurse just scanned his bladder and it does show that it has urine in it. We are giving him til morning to go on his own. Vivonex ten was started through his new J tube at a very slow rate of 5 ml/hour. Since the feeds have started, he has been saying that his belly hurts. We are keeping our fingers crossed that his belly is just sore from the surgery and not from the feeds. His doctors are also keeping a close eye on his ostomy output. We have been emptying his bag almost every hour for the past 4 hours and draining 200 cc every time. This is much more that he is taking in. They decided that he should have his IV fluids restarted at a low rate to keep him hydrated.

He hasn't walked since surgery yet but he went for a short ride in his stroller and stood to get weighed. Tomorrow he needs to get up and walk a bit even if it's just around the room.

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