Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Wednesday, June 17, 2009

Beach Day!

Matthew had another field trip today with his preschool friends. We walked to the beach for a picnic. The city beach is just down the road from our school. Matthew had a good time riding in his stroller, but did not enjoy being at the beach. The entire class with the exception of Matthew went in the water and played in the sand. Matthew wanted to be carried and did not want to be put down on the sand. He did sit for a few minutes, but only with a towel wrapped around him.
It was very windy and his eyes watered the entire time. I thought that by seeing his friends playing and having fun, he would want to join in. Well, that wasn't the case. He watched them play but had no interest in joining them.His blood sugars were on the high side again today. (196 and 189). We still don't have an answer as to why they run high. He will also be getting his PICC line out tomorrow evening at our local hospital. His line will stay out until his doctors come up with a new plan.He did have a good PT session this afternoon and had fun riding in his stroller this evening on our walk.

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