Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Monday, March 16, 2015
Another busy month has gone by. We are still waiting for some signs of Spring here in the North Country. Things are finally starting to thaw and hopefully SOON it will warm up. Matthew has been feeling ok other than a lingering cold and stuffy nose. It seems to have stuck around for most of the fall /winter.
Tomorrow, he is having casts made for his new AFO legs braces. He picked out a pretty cool pattern for them and has his fingers crossed that Jeff (his orthotist) can order it. We will also be traveling back to Boston in April for more follow-up appointments. He will be seeing GI, Endocrine, Metabolism and a Rehab doctor.
Matthew sang and danced the night away this past Saturday. His favorite band , Glengarry Bhoys were in town. Sunday was spent resting and recharging. He says a day of rest is all worth it.
Posted by nyveggie at Monday, March 16, 2015