Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Tuesday, December 30, 2014

Happy Holidays to everyone. We had a busy but nice Christmas week with family and friends.

 Matthew has not been feeling the best so far this week. His sodium was low again just before Christmas and has continued to be low. We tried to have his labs done on Sunday since his eyes were looking pretty sunken in, 

 increased output and a belly ache, but they were not able to get any blood. We ran half pedialyte /half formula over night on Sunday and had his labd redrawn yesterday . His sodium was still low along with a low Chloride level. We spoke to his doctors and we came up with a plan to continue the pedialyte/formula again overnight and see how he does. So far this morning he is looking much better. He still has a belly ache, but he looks more hydrated. We will try to decrease the pedialyte and increase his formula back and see how he tolerates it. If he gets worse or looks more dehydrated, we will probably have to get some IV fluids to re-balance his system.
On a more positive note, Matthew had his ear appointment yesterday .His ears look great  and his hearing is perfect :) Today , he also has his first Orthodontist appointment. We know he will need braces but checking to see if he is ready for them.
Thanks to everyone who has sent Matthew Happy Mail and holiday greetings. Matthew loves reading the post cards, cards and letters from all over the world.

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