Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, November 10, 2014


Matthew had a wonderful Birthday weekend. Members from SUNY Plattsburgh Baseball team stopped over on Thursday night to wish him a Happy 10th Birthday. They stayed and visited for awhile and even had a mini dance off. We had a small family party on Saturday and Matthew took a few of his friends to see Big Hero 6 on Sunday. He loved the movie and now is interested in trying to build his very own robot. :)

We leave for Boston in the morning. Matthew has his routine appointments and testing through Friday. Friday afternoon we will be driving to Albany for the night and then off to Glens Falls Saturday morning. Matthew will be having his two incisors removed by his dentist. He needs some room for his adult teeth to come in.
 Its going to be a busy week medically but we are trying hard to fit some fun things in while we are there. Matthew will have an Icing Smiles Cake on Thursday. This will be a "Matthew Friendly" cake that he will be able to taste and maybe eat a small piece.  We are also going to the Stone Zoo to see a Tree Kangaroo. Matthew has been reading about Tree kangaroos and wanted one for his Birthday. We found out that they have one at The Stone Zoo which is only 9 miles from where we are staying. Since its not possible to actually own one, he will at least be able to see a real live one at the zoo. :) He is super excited.




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