Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Sunday, February 2, 2014
Matthew had a very busy weekend.
- Friday night he saw his favorite band, Glengarry Bhoys perform at Olive Ridleys. His friend Lily and her brother Jack were also there. He danced, sang and hung out with his friends. http://youtu.be/6MXraHwNWok
-Saturday, Matthew attended Snowball: A Celebration of Winter in the North Country .He caught the "golden snowball" (a gold soft ball) thrown by our city Mayor. He was not a fan of being outside in the cold, but was a trooper about it. We didn't stay long, but at 35 degrees, I believe the rest of the community was thinking it was a heat wave.
Matthew also had a photo session done by a local photographer, Ken Brodeur. He approached us a few weeks back at the Make a Wish Bridal show and asked if we minded if he did a photo shoot of Matthew at his studio. Matthew loves to have his picture taken, so we agreed. He did a wonderful job. You can check out the proofs here: http://www.kenbrodeur.com/matthew
Since yesterday afternoon, Matthew has been on the couch just relaxing and recharging.
Check out some of the new video links and pictures I have added.
http://youtu.be/7uxXs3BZvog Matthew talking about how his doll "Pancakes" broke his leg
http://youtu.be/HngTiAw3Y1M Matthew singing
Posted by nyveggie at Sunday, February 02, 2014