Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Thursday, December 27, 2012
With the exception of a small bump in the road, everyone here had a good Christmas. Steven ended up having a high fever on Christmas eve but was feeling well enough to open gifts on Christmas morning.
Matthew received his "Time Machine Kit" complete with instructions on each item included. He was beyond excited and keeping it safe in his room. He also got a 2 foot homemade candy cane. He wanted to open it right away. "Delicious" is what he said when he took his first lick. He held onto it all morning until he accidentally knocked it off of the table. It broke into pieces and he was so upset. We rinsed off the pieces and told him it would be easier to eat now that they are smaller . :)
The past few days have been spent cleaning up the holiday mess, taking down the tree and organizing the new stuff. Matthew has enjoyed being in all of his new jammies and playing with all of his new toys. He has also been very busy reading his new Magic Treehouse books and his Percy Jackson series.
Tomorrow he goes for labs. Last week they were off . Hoping they are better this week. We are at a stand still with everything else. Still no real plan to get better nutrition into him without causing more problems.