Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Friday, July 27, 2012

July is almost over. Matthew has one busy little boy. He only has two things left to cross off of his summer bucket list. So far the only this that he has not like has been..... CLIMBING A TREE... and this was the number one thing he wanted to do on his list. :) We tried to find him a nice beech tree to climb because I heard that they have low branches , but we were unable to locate one. We did however find a beautiful maple tree in New Hampshire on our way back from Boston. It was in a huge field and at least we (Terry and I) though it was perfect. Matthew had a different view on it. When we placed him on the first branch, he realized that it was pretty high up and he was scared. We reassured him that we were right there and we were not going to let him fall. Then, he notice that BUGS also live in the tree and not just any old bugs........ "HUGE LONG LEG BUGS WITH PINCHERS " .. He wanted out... I convinced him to take a few pictures and then he was done. He decided that he would stick with tree houses.

He played frisbee with Damian, played on a big playground and went exploring on Valcour Island with our friend Nichole and her daughter Ava. He also danced with the Glengarry Bhoys at an outdoor concert.

The days in between have been spent resting on the couch with his favorite ipad. Some days he ventures out to the back porch or to the camper when its cooler.
As for his medical appointments . They went ok. We still have some decisions to make about
 some discussions that went on at our team meeting in Boston so we haven't posted about it yet. As soon as we decide on a set plan we will let everyone know.

1 comment:

Smilen Champ said...

Hi matthew
My name is Jenna, you are a brave, courageous fighter and an inspiration.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
It doesen't matter what other's say
we are special anyway.
What is forty feet and sings? the school chior