Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Wednesday, February 2, 2011
SNOW DAY!
Me and Matthew :))))
Making a snow angel for Eithene but not liking laying in the snow. A snow angel for Eithene!
Trying to get to our snow covered front porch.
Getting ready to go outside in the snow for the first time this winter.:)
I was so glad to find your blog. I am trying to research mitochondrial diseases and to find other families dealing with it. My youngest son has a white matter disease and they are now leaning toward mitochondrial rather than leukodystrophy, but still no name for what he has yet.
Me and Matthew :))))
Making a snow angel for Eithene but not liking laying in the snow.
A snow angel for Eithene!
Trying to get to our snow covered front porch.
Getting ready to go outside in the snow for the first time this winter.:)
2 comments:
I was so glad to find your blog. I am trying to research mitochondrial diseases and to find other families dealing with it. My youngest son has a white matter disease and they are now leaning toward mitochondrial rather than leukodystrophy, but still no name for what he has yet.
Your son is precious. I can't wait to read more!
jessica
http://cameronlanejordan.blogspot.com
You have an absolutely beautiful little boy and your website brings tears to my eyes.
www.mightymitomom.com
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