Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Sunday, August 8, 2010

So far, the lock on the fridge is working well for Matthew. It stinks that the rest of the family has to lock and unlock the fridge door, but everyone is getting used to it now. Most importantly, Matthew says he is happy that the door is locked. Now he knows he can not be tempted into sneaking food from it.
Matthew did however eat part of a chocolate chip cookie yesterday. The boys and their friend Hali were having a garage sale to raise money for the Mito Action walk. They were also selling cookies. Matthew ended up sneaking part of a cookie and immediately started to cry and get very upset with himself. He kept saying that he tried not to do it but couldn't help it. Terry brought him inside and gave him a bigger dose of Benadryl. I managed to suction most of the cookie out of his tube. Within a few minutes he had hives on his face, but otherwise was ok. I checked the cookie ingredients and it listed eggs as less than 2 % . The garage sale went well. The kids worked hard and made 155 dollars. They each kept 30 dollars and donated 65 dollars towards Matthew's team. We are very proud of all of them.

Today we went to our first annual street party. Matthew had a very good time. The weather was perfect for him. It was cloudy and 68-70 degrees. He had fun playing with two of his neighbor friends, Ryan and Michaela.
Matthew's tree fort is almost done. We just need to find some rock wall rocks that are not so expensive. We have a busy week ahead. Matthew has PT tomorrow, an eye appointment in VT. on Tuesday and we leave for Boston on Wednesday. Matthew has appointments at both CHB and Tufts on Thursday. All three boys will be coming with us this time. We found a hotel with a pool, so Bradley and Steven will have something to do.

No comments: