Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, June 7, 2010

We made it to Boston early this afternoon. Our Angelflight pilot had to cancel because of the weather. We were able to fly out of Plattsburgh on a local airline that allows Angelflight families to fly for free. The flight took just over an hour, much better than the 5 hours we normally drive. The flight was very rough and Matthew ended up getting sick during the flight. He was a trooper though and made it through the rest of the flight ok. We spent the afternoon walking through Downtown Crossing and Chinatown. It was interesting seeing the signs in Chinese. Poor Matthew was all confused as he is just learning how to read.

Tomorr​ow will be a busy day. Matthew has an appt tomorrow morning with a GI doctor at Tuft's for a second opinion regarding his status. After that appointment it's back to the hotel to pack up and head over to Children's to get him admitted for his 24 hour video EEG.

We are hoping to meet with some of hour friends while we're at Children's. Matthew won't be able to leave the room once he gets hooked up to the EEG monitor.

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