Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, October 19, 2009

A good weekend for Matthew. He had a great time spending Friday evening with our friends. The highlight of his night was being able to roast and eat a marshmallow. He enjoyed every bite of it.

I came down with the nasty stomach bug on Saturday night. It's going around our classroom and made its way to me. I was in bed all day yesterday. I'm feeling better today but still not great.

The orthotics company sent Matthew's braces back to us today saying they were fixed. They put white straps on them to keep him from hyper extending his knees. They are worse than before. Now he can't even stand up straight. I'm sending them back. They are useless and I am very frustrated with them.

Matthew woke up with a belly ache this morning but seemed to feel better as the day went on. He took a good nap when he got home from school and is watching some TV and drawing some pictures before he goes back to bed. His belly is very distended .We were able to vent some air a few minutes ago but it's already getting distended again.Matthew received a package in his happy mail on Saturday. It was from our Caringbridge friend Makaylah and her family. Makaylah's sister Hannah who is 10 years old wanted to use her birthday money to buy Matthew something from Disney. She bought him Disney Princesses and some really cool goofy lollipops. Thank you so much Hannah. That was super sweet of you. Matthew loves everything.

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