Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Monday, August 24, 2009
Monday, August 17, 2009
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On Saturday, we went to a Balloon Festival in Canada. It has the worlds largest inflatable amusement park. Matthew loved going through the different jumping houses and obstacle courses. He didn't like the slide parts.
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Yesterday we took the boys downtown to see a motorcycle parade. Over 300 motorcycles drove by.
Now for the medical stuff. Matthew went to the doctors this morning for his routine check up. His doctor still wants us to contact the Mayo Clinic to see if he can be seen there to get another opinion on treatment. I did e-mail them this morning and we should hear something back from them within two days. Matthew's sugars have been getting higher. He had two readings of over 400 and his fasting base line reading is around 116-120. He is also still having daily leg issues where his legs go numb. He says that they get "soft" and that he has to hold them up. This has been lasting around 10-15 minutes each time it happens.
We also have a tentative meeting date in Boston on September 11th. We will be meeting with Matthew's doctors and the PACT team. We will also be walking in the Mito Walk on that Sunday.
Now for the medical stuff. Matthew went to the doctors this morning for his routine check up. His doctor still wants us to contact the Mayo Clinic to see if he can be seen there to get another opinion on treatment. I did e-mail them this morning and we should hear something back from them within two days. Matthew's sugars have been getting higher. He had two readings of over 400 and his fasting base line reading is around 116-120. He is also still having daily leg issues where his legs go numb. He says that they get "soft" and that he has to hold them up. This has been lasting around 10-15 minutes each time it happens.
We also have a tentative meeting date in Boston on September 11th. We will be meeting with Matthew's doctors and the PACT team. We will also be walking in the Mito Walk on that Sunday.
Saturday, August 1, 2009
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Matthew also received a special surprise in the mail this week. Online friends of ours sent him some new ponies. He just loves them . Thank you Gabi and Mikey!!!
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