Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.
Matthew had a great time at his benefit dinner last night. He looked like such a little man. By the end of the evening he was collecting items in his hat to take home. At one point he had a salt and pepper shaker, some dental floss, the bowl full of sugar packets, and some money. We told him that he had to put everything back except the money and a few sugar packets. He was happy with that.
Matthew has been fighing off a cold this weekend but has rested well and was a good mood. It's a welcome change from last week. He was in the worst of moods last week. He loves to go to school but he gets exhausted and very crabby when he gets home. We need to find a way that he can rest more while at school and in the afternoons. I brought him outside this evening to take a few pictures. We didn't stay out long since the bugs were attacking us! Here are a few pictures from tonight.
The last few days Matthew seems to be hyper extending his knees more often than he has been. We are using his braces when he is active at school and home and keeping them off when he is sitting not walking around much. We are not sure if his braces are a big benefit to him or not. He still finds a way to hyper extend his knees when he is wearing his braces. We have noticed that he doesn't hyper extend his knees as much with the braces on. This picture is from last night. As soon as Matthew stands in one position for more than a few seconds, he usually will look like this. I am going to post this on a parent support group and see if they have any other suggestions .
It was Matthew's first day of preschool today. His bus arrived 25 minutes early and Matthew was still in his PJ's. Terry Had to hurry up and get him dressed and out the door . He did a great job on the bus and was happy when he got to school. He had a wonderful day and said that he had fun. It's now 6 pm and he's ready to go to bed. He's very tired and cranky.
Matthew(almost 4) getting on the bus for the first time.
Matthew at the writing center at school.
Matthew and Steven being Kings after the MDA telethon.
Matthew wanted to make a silly face.
Matthew had a great time at his benefit dinner last night. He looked like such a little man. By the end of the evening he was collecting items in his hat to take home. At one point he had a salt and pepper shaker, some dental floss, the bowl full of sugar packets, and some money. We told him that he had to put everything back except the money and a few sugar packets. He was happy with that.
