Matthew is the youngest of our three boys. He has been diagnosed with Mitochondrial Disorder Complex I and III, Chronic Intestinal Pseudo Obstruction, FTT and Glucose Intolerance. He has been through countless tests and procedures in the past 8 years . We do not know what the future holds for him, but we are going to do our best to cherish every day with him. Stay strong little man.

Monday, June 7, 2010

We made it to Boston early this afternoon. Our Angelflight pilot had to cancel because of the weather. We were able to fly out of Plattsburgh on a local airline that allows Angelflight families to fly for free. The flight took just over an hour, much better than the 5 hours we normally drive. The flight was very rough and Matthew ended up getting sick during the flight. He was a trooper though and made it through the rest of the flight ok. We spent the afternoon walking through Downtown Crossing and Chinatown. It was interesting seeing the signs in Chinese. Poor Matthew was all confused as he is just learning how to read.

Tomorr​ow will be a busy day. Matthew has an appt tomorrow morning with a GI doctor at Tuft's for a second opinion regarding his status. After that appointment it's back to the hotel to pack up and head over to Children's to get him admitted for his 24 hour video EEG.

We are hoping to meet with some of hour friends while we're at Children's. Matthew won't be able to leave the room once he gets hooked up to the EEG monitor.

Saturday, May 29, 2010


We are back from our mini vacation to the Great Escape Lodge/indoo​r waterpark. We went there to celebrate Bradley's 14th Birthday. Matthew who usually hates pools, was very excited when we arrived. It wasn't crowded at all and no lines for any of the water slides! This was a big plus for getting Matthew to go in the water. He doesn't like to be spashed and he is always afraid of being knocked over. I brought him to the toddler section and the water was warmer than bath water. Matthew loved it. He did go down the smallest slide a few times but still held onto the side of it. I guess he just never like slides. He was in the water for over an hour. We even got him to go down the big family tube(ONCE). He didn't like it at all but we were very proud of him for trying it.
That evening we had a dinner at Johnny Rockets and about ten of the workers came out and sang Happy Birthday to Bradley. His face was bright red!

We went back to the waterpark on Friday morning, but Matthew didn't want to go in the water. I guess the excitement of the park was over. He was tired and wanted to go. However, he did enjoy getting a "Mito" turtle tattoo. We spent the rest of the day walking down in the village of Lake George while Bradley and Steven went to the Great Escape park. Everyone had a wonderful time.

Monday, May 3, 2010

This was sent to us from Matthew's PE teacher. She took it while he was taking his nap at school. He looks so sweet.
Matthew was enjoying a coolwhip cone on my Birthday.
Matthew was so exhaused Saturday night after the garage sale and BBQ. He passed out cold in the car and didn't wake up til the next morning.
Matthew selling lollipops




Tuesday, April 6, 2010

Easter Morning.

Matthew showing off his SUGAR FREE peeps Crazy Easter grass hair!
My little man!
Matthew's new pillow case from Carrie!





Saturday, March 20, 2010

Matthew outside of Tufts Hospital in Boston. Matthew's good friend Eithene.
Matthew and Eithene. Matthew has his new doll. He named him Pancakes.

Terry And Matthew

Matthew and his Statue friend at CHB
Me and Matthew









Sunday, March 14, 2010

The 2010 Make-A-Wish Gala in Saratoga, NY.



Wish Children

Matthew saw the stars on the ceiling move and he said it was time to make a wish.


Not feeling well by the end of the evening, but still had a wondeful time.